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I. How We Work in Washington. Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services. APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
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III. When We Tour. APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
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V. Complaints. Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights. APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.I agree that: A.I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information"). B.APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink. C.APFM may send all communications to me electronically via e-mail or by access to an APFM web site. D.If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records. E.This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year. F.You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
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Mostly Independent
Your loved one may not require home care or assisted living services at this time. However, continue to monitor their condition for changes and consider occasional in-home care services for help as needed.
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That is correct. No more chemo, no radiation, just painkillers and meds for anxiety and to minimize hallucinations or delirium. So sorry for you to be at this juncture. Make him comfortable and try to accept this is how it is.
Is the skin lesion painful? Would removing it have some immediate (not long-term) benefit?
I think the approach hospice takes is that the patient is dying (from you profile I'd guess from cancer) and their mission is to make him comfortable and at peace. If the goal of removing a cancerous lesion is to prolong his life or to provide a cosmetic benefit I doubt it would be approved. But if it provides some immediate benefit such as reduction of pain perhaps it would be considered.
Were you advised by Hospice that this could not be done? Don't take a second-hand opinion. Ask hospice directly.
The patient can, of course, withdraw from hospice and have the procedure done. You could discuss this option with the hospice folks, too.
My FIL had CLL and was in Hospice and he had several skin lesions removed, Why, I do not know, but he chose to. He actually wasn't totally healed from those when he passed away. He also had new dentures made just weeks before his death. This man was a fighter and in total denial to the moment he passed away.
If the lesion is uncomfortable, and if it can be removed without leaving a worse wound that itself would be unlikely to heal, its removal could be part of palliative care rather than therapeutic. I agree with Jeanne: don't take anyone else's word for it, ask direct questions.
Going thru this right now. Small growth on husbands ear has gotten much larger in past few months. One on elbow... same thing. Nothing will be done. Wish it could be, because it is 'in the way' so to speak. They catch/snag on things, causes bleeding. But... that is how it is with hospice. No way of knowing if it hurts because he has been unable to speak for several years.
My husband did not make it to Hospice care (flesh eating bacteria took his life) As an R.N. from the 60's I am new to understanding Hospice theory. Presently am trying to understand why a patient, regardless of diagnosis, would be denied range of motion exercises, dangling feet off side of bed, or being wheeled out to see and get a bit of sunshine. These things could prevent blood clots (which could hasten demise) and as well known now, sunshine can lift depression which certainly can be present in a terminally ill patient. Just trying to understand.
When my grandmother was in hospice, she was being told one thing by some of the nurses "We'll have you up and walking in no time" and other things by others "You don't have to get up to try and walk if you don't choose. We just want you to be comfortable..." Meantime, as a family we are cleaning out her home, dividing up her things (per HER request) and planning her funeral. She passed after less than 4 days in Hospice Care. I think for each individual, it's different. With daddy, we simply kept him out of pain (round the clock liquid morphine). To this day my mother insists "I killed your father". Well, if she is guilty, then so I am I. I gave him morphine too. AT some point, we are hanging on to someone's life for US, not them. Death is a deeply personal issue...we respected daddy, and grandma's wishes. I don't think we "denied" them anything. Hospice is about respect and comfort for the patient, and unless the patient wanted to go out and get sun, or do exercises.....my understanding is that you offer palliative measures only.
Perhaps the word "denied" was a bit strong...it is a fact that a patient has a good chance of developing pneumonia if allowed to just stay in one position, which does not make for a comfortable death, given choices. I can see I have a lot of reading to do to understand the Hospice theory as opposed to good basic nursing care.
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington.
Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services.
APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid.
We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour.
APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment.
You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints.
Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights.
APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.
I agree that:
A.
I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information").
B.
APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink.
C.
APFM may send all communications to me electronically via e-mail or by access to an APFM web site.
D.
If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records.
E.
This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year.
F.
You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
I think the approach hospice takes is that the patient is dying (from you profile I'd guess from cancer) and their mission is to make him comfortable and at peace. If the goal of removing a cancerous lesion is to prolong his life or to provide a cosmetic benefit I doubt it would be approved. But if it provides some immediate benefit such as reduction of pain perhaps it would be considered.
Were you advised by Hospice that this could not be done? Don't take a second-hand opinion. Ask hospice directly.
The patient can, of course, withdraw from hospice and have the procedure done. You could discuss this option with the hospice folks, too.
As an R.N. from the 60's I am new to understanding Hospice theory. Presently
am trying to understand why a patient, regardless of diagnosis, would be denied
range of motion exercises, dangling feet off side of bed, or being wheeled out to see and get a bit of sunshine. These things could prevent blood
clots (which could hasten demise) and as well known now, sunshine can lift
depression which certainly can be present in a terminally ill patient.
Just trying to understand.
chance of developing pneumonia if allowed to just stay in one position, which does not make for a comfortable death, given choices. I can see I have a lot of reading to do to understand the Hospice theory as opposed to good basic nursing care.