My husband had a hemorraghic stroke 9 yrs ago.. He was very mobile at first but now has become completely deaf (he got a cochlear implant) but his balance is terrible. Stumbles and falls frequently and will only use a cane. He has several conditions with his eyes...some days he sees well others not so much. He is starting to have some short term memory moments. He also has kidney disease as a result of his kidneys shutting down immediately after his stroke.
We recently had a family get together. We brought our boat on a trailer behind our truck to the lake. I spoke with my husband before we went about maybe letting me drive since it tires him out so much and he agreed with no arguments. So the day we were about to head home I made the comment to my daughter that I hoped he would be ok with me driving home... My husband and I had not discussed it. But our 22-yr-old grandson heard me and screamed and me That I should let him drive his own damn freaking truck. I told him he had no idea what he was talking about & then his Mother (our daughter) jumped in the mix... I told them they don't live with us & really don't have a clue how we mange his care.
My husband and I have gotten into a good place about his driving... He usually asks me to drive when we go anywhere together. And he drives short distances to Walmart, Lowes, grocery, dry cleaners which are all within 1.5 miles of our house.
Apparently they have decided that I am the mean old woman and have forbidden him to drive... which I have never said or done... He has restricted his own driving, which was a huge blessing that I didn't have to bring up that topic. Which makes me know that he realizes his limitations and we have settled into a rhythm on the driving... for now. And now the whole blow up is my fault... Very disheartening when you are doing your very best and every waking moment is making sure all our ducks are in a row and to have someone lash out this way...
Thanks for letting me vent and any suggestions will be welcome. Thanks so much.
I think this is where you did not need to open the driving up for discussion:
" he agreed with no arguments. So the day we were about to head home I made the comment to my daughter that I hoped he would be ok with me driving home... My husband and I had not discussed it."
Of course you needed to vent, needed support. But keeping it just between your husband and you would have a better result.
You got the two of you there, with him agreeing, no arguments. It could have been the same going home. Just thinking, but I was not there, you were. Is it possible we are our own worst enemy?
How are you doing?
We almost lost 2 of our 3 children because of a selfish old man who had no business being behind the wheel.
Hope your husband doesn't kill anyone before he stops driving.
Hugs 🤗
I also wonder if daughter is talking about your dynamics to grandson. And they decided your concern looks controlling. I find it odd in that one instance grandson would have such a freak out over that one comment. Seems like something in his mind was brewing. I could see a snide comment, but the yelling makes me think there is more to it. Do they call and talk to your husband? Has he said something they mistook for you being controlling? Like I wanted to go pick that up at Walmart, but wife won't let me. But not saying you drive him there instead. And their imaginations took off.
Sooner or later they may want another boat ride or contact. I would set them straight right quick. And anytime they want to come and take over care and errands they are welcome. Bet they won't. And remind them that you don't want him to kill someone on the road because he doesnt have stamina, and the boat jacknifed in the axident or flipped over, or be sued if there is an accident. So they should stop being judgemental.
It sounds like they forgot he had a stroke, and there are residual side effects that can continue after someone has one.
They could also be in total denial of his condition. My sister told me how heartless I was to my mom, as I drove her back from the hospital. There was an argument my mom started. My mom told my her via phone. So she called me to lecture me. I said yea I'm so uncaring, I took her to the hospital bc I was concerned, and they kept there 3 weeks. And I visited, and drove her home insteading of making her take an uber. My sibling didnt think there was a problem. Hadnt visited. That shut her up.
So you need to jump on that and finish that argument. If they can take a nice boat ride, they can come help and give you a break, and see the situation. Keeping rheir distance and judging shouldnt be tolerated. Good luck.
its just very sad that they did that..And as far as getting a break, my husband doesnt realize all I do, handle, and the planning of our life. I had even said when I was wanting to go somewhere over night, that our 18yr old grandson who is local, could come and stay with him...He said "I dont need someone staying with me,, I am fine!!"
We are all somewhat in the same boat{LOL} and the support from the caring people on this sight helps me realize I am doing ok and not losing my mind. Thanks so much.
Great grandson apologized. I agree that maybe seeing his grandfather aging and with limitations is upsetting. Your daughter, she will get over it in time. Actually, your husband should have sided with you. It could be your care and understanding that has helped him get this far. And as a caregiver, you have a right to explode every so often.
Your husbands driving should stop if he is having trouble seeing at times. Losing his balance could also mean him not being able to place a foot on the brake in time to stop the car. Having good reflexes is important in driving too.
My husband is not allowed to drive. Period. His motor skills are not great, anyhow needed medical for licence and doctors here have duty to report to MV, needless to say for now no renewal.
He has not driven since injury's over a year ago. I would not let him.
No argument, discussion or any drama.
Id also not contribute a sime to this spoilt entitled kid who knows nothing. Save your money for your husband's care, and your own. You are going to need it.
Yes, he is inexperience in these matters. What a shame he took a confrontational approach rather than a quiet word in private to discuss.
I suppose it stemmed from his perceived view of looking after Grandpa's free will/freedom...
In time, maybe he will learn to engage brain, eyes & tongue before reacting.
There are many good reasons the driver sits up front - as you are. You can see the road ahead, understand the conditions, spot danger, avoid obstacles. Backseat drivers giving their advice from back there cannot see the whole road.
'Backseat drivers' are exactly what I would call those family members input.
I would suggest talking with his neurologist and/or primary care provider about the driving since he has several issues that make driving safely a problem: eyesight, balance, short term memory loss...
I'm assuming they already had some sort of tension, given that the grandson's behavior came out of the blue and your daughter's lack of support for you and your husband seems to be atypical.
Daughter may be ashamed that she failed to show son her shock at his inappropriate behavior, and embarrassed that you saw her son behave so badly.
Coupled with their shock at how your husband/her dad/his granddad has declined, it may have been the perfect storm of distress.
It may be that just maintaining loose contact with your daughter - short texts, brief phone call, greeting card, etc. and not talking about what happened to any of the other family members will let the flames cool down to embers that go out with no further air/fuel.
It was just so senseless and out of the blue...Thanks again
There might be some similarities with you, and might perhaps explain your daughter’s feelings?
The reason this was such a shock coming from our grandson is we really have a great relationship and love each other so much. We have never had an issue with him ever.... I kind of think that after spending a couple of days with us, he sees his granddad diminishing in many ways and he lashed out at me.
Very disappointed in my daughter though, If one of my children talked to their grand parents in that manner, they would have known not to EVER do that again. My daughter made excuses for him....
thanks again so much...the positive words meant to much.
As far as your GS’s bad manners, I’d recommend a strategy I used on my early teen daughters. Stop the car, say that you won’t be tolerate this in your own car, and he can get out. Drive a mile up the road and stop to wait for him. He may by then be in a different mood. It’s about his behavior, not your DH’s abilities. Don’t argue about DH, GS behavior is inexcusable to you, you DH, and your daughter.
After you get him out of the car, drive on a while, then have a calmer discussion with your daughter. If she doesn’t calm down, stop again and suggest she waits for son to catch up. Then drive on again. If she does calm down, have a sensible discussion about what you and DH have agreed, and why. Plus the suggestions about how she can learn more about your own day-to-day reality.
If it was a ‘one-off’ incident, it’s a pity to mess up family arrangements big time, especially for a very immature young man. Driving off and leaving him and his mother to phone for a taxi is going to mess things up big time in itself, but my own experience is that even walking around the block can change the tone of what goes on.
The Armchair Critics is what I call those who cast opinions & judgement on OUR care of THEIR loved ones while they do NOTHING but point fingers from their armchairs. True that, huh?
I'm also in the same boat as you are, actually. I was the caregiver to my DH for 7 weeks in AZ while he had a liver transplant at the Mayo Clinic. My daughter came with us, his stepdaughter, who's an RN, and helped with his recovery b/c we BOTH wanted her there; she's been instrumental in his healthcare for the past 2.5 years since he's had issues. So DH's 2 daughters have decided that I'm the Bad Guy now b/c I've 'prevented them from seeing their father' which could not be further from the truth. They are jealous that my daughter came out there with us while they did nothing but act like Armchair Critics the whole entire time, and add to my stress like you cannot imagine, conducting themselves like infants.
So, I feel your pain. I held out the olive branch to these girls and have been ignored. My DH was told by the Mayo psychologist to forget about his daughter's issues and to focus on HIS recovery ONLY now. This, from the mouth of a professional. When loved ones decide to act out and treat us like dirt, we have to step back and decide what's important: our own health and wellbeing together with our husband's, or focusing on the infantile behavior of our children/stepchildren/grandchildren who are entirely CLUELESS about what our lives have evolved into these days? And about what their FATHER'S (or grandfather's) lives have evolved into? Should they decide to look past the tips of their own noses for a change, they may actually see there's more to this picture than they've chosen to see. Which means they realize WE have feelings that have been seriously hurt in all of their selfish nonsense.
I hope so, but I'm also skeptical, at least in my step children's case. Perhaps when things calm down a bit, you can write a letter to your daughter and your grandson, letting them know your role in DHs life now, and his compromised lifestyle as a result of his stroke. Had they bothered to take an active role in his life and in his recovery, they'd have known all this by now. Sadly, they didn't, but you can enlighten them IF you so choose to. And also let them know you don't appreciate being treated in such a disrespectful manner when you are the foundation of this man's life and recovery now. Without your loving and devoted caregiving, there would be no such recovery for their father and grandfather. It's too bad they don't recognize that fact w/o you having to point it out to them.
Wishing you the best of luck with all you have on your plate. My hat is off to you for being such a wonderful caregiver to your DH, cheers to you dear woman!
But all my daughter has done is call my other daughter, my husband, and her own daughter to get her side out there...I have talked to no one...will be with my counselor On MOnday...thanks for stepping up and telling me about your situation...we can all learn so much for each other..thanks again
I need to realize and accept what you are saying about them not understanding.....it was just such a shock because they had never said one word in all these years. Thanks again...hugs and prayers
1. Why aren't you "letting" Bertha do "xyz?" Don't you care about her dignity?
2. Why are you "making" Bertha do "abc?" She shouldn't be doing THAT herself.
The answer to question #1 is always "Because we tried that and it's not safe for her to do that. I'm accountable if she gets hurt, so it's MY call."
The answer to question #2 is "Bertha is perfectly capable of performing that task and her doctor agrees."
Repeat as necessary. There were times when I provided additional details to assist with understanding and try to keep the peace, but you're not obligated to keep a non-caregiving person in the loop. They really don't know what they don't know.
What you and your husband do is none of his or his mother's business.
I do not tolerate disrespect and would not deal with them anymore. You do not need to deal with their abstract stupidity.
They offer no support so forget about them, they are toxic.
I hope there might be a chance for him to reflect on his behavior and apologize to you in the future. He certainly should.
The issue is with the 22 year old's manners - plain and simple. On what's his business, the language he uses, his tone of voice, and lack of respect for his elders.
If you want, you an try “I’ll give your opinion some thought” (then forget it).
But if your husband would consider taking a driving assessment, maybe offered by AARP, you’d be in a better position to decide if he should be driving or maybe shouldn’t be.
If the vision issues are in any way progressive, a baseline evaluation may be useful for you for your (his) records, if nothing else.
Sounds like you and he are definitely attempting to take care of things in a straightforward way. Good for you both.